Nuestros embajadores

NUESTROS EMBAJADORES

Let’s Cure ACC, como organización internacional dedicada al carcinoma adrenocortical, se enorgullece de contar con voluntarios, los embajadores, que pueden conectar con pacientes o cuidadores en su idioma nativo. Su función principal es ayudar a Let’s Cure ACC a interactuar eficazmente con los pacientes, sus familias o expertos locales, para crear conciencia y brindar un apoyo invaluable a quienes padecen carcinoma adrenocortical, superando las barreras lingüísticas y culturales. Como sabemos, tener a alguien que te escuche y te ayude en tu propio idioma debería ser un derecho básico para todos.

Para ponerse en contacto con un embajador en su idioma, rellene el formulario. Tenga en cuenta que, lamentablemente, no se ofrecen todos los idiomas, pero esperamos crecer y abarcar más.

Si está interesado en unirse a nosotros como embajador o conoce a alguien que pueda estar interesado, póngase en contacto con nosotros para obtener todos los detalles. Todo el mundo (pacientes, cuidadores, médicos, enfermeros…) puede unirse a nosotros.

Contáctenos

YAMNA

Caregiver-psychologist

🇲🇽

Yamna is 46 years old, born and living in Mexico. She is married with no children and have three dogs. She works as a psychologist at a school, teaching and supporting students academically and emotionally. Her  sister-in-law passed away from adrenocortical cancer, so with her nephews, her brother, her mother, they  have been supporting each other through their healing process.
She have been providing psychotherapy for over 18 years, and she feel very grateful to be able to listen to and help people.

Tengo 46 años, nací y vivo en México. Soy casada sin hijos y con 3 perritas. Trabajo como psicóloga en una escuela dando clases y apoyando alumnos en lo académico y emocional. 
Mi cuñada falleció debido al cáncer adrenocortical por lo que entre mis sobrinos, mi hermano mi mamá y yo nos apoyamos para ir sanando.
He dado psicoterapia desde hace más de 18 años, me siento muy agradecida de poder escuchar y ayudar a la gente.

AARYA

Incoming Medical Student

🇺🇸 🇮🇳

Aarya was born in 2002 in Texas and now lives in California. She’s currently wrapping up her master’s at UCLA and will be starting medical school later this year. In 2024, as an undergraduate at the University of San Francisco, she completed an honors thesis investigating ACC. Since then, she’s had the privilege to support Let’s Cure ACC as a patient ambassador by primarily acting as a science liaison – including writing descriptions for emerging therapies, making guides for new papers, and updating our website’s patient guide.
As an incoming medical student, she hopes to dedicate her career to the study of rare hormone-sensitive cancers and find new ways to advocate for patients facing these diseases.

CHARLOTTE

20 year survivor

🇺🇸

Charlotte, born in 1971 in New Orleans, Louisiana, USA, is a pharmacist by training and working as a Market Director in Kansas. 
She was diagnosed with ACC in January 1999 and underwent extensive treatment, including mitotane therapy for 4.5 years, 3 surgeries, and 5 separate recurrences. She had been in remission since May 2005. 

In her personal life, she enjoys traveling, cooking, yoga and tennis. 

MARCIE

Patient

🇺🇸

Marcie is 45 years old and a lifelong educator. Her 3 favorite things are boybands, baking and Broadway shows. She was diagnosed with ACC in November 2021, and deemed to be ’no evidence of disease’ in December 2023 after massive surgery, two years of daily Mitotane and 25 rounds of radiation. Marcie believes in the importance of being your own best health advocate when faced with such a serious diagnosis.

MASAKI

Clinician-scientist

🇯🇵 🇺🇸

Masaki is an endocrinologist with a clinical and research focus on adrenocortical carcinoma. He has established a dedicated oncological endocrine clinic within a national cancer hospital in Tokyo, where he has been involved in the care of patients with ACC.
In parallel with his clinical work, he is conducting translational research on ACC in Japan, Germany and Australia. As an ambassador, his goal is not only to advance research, but also to listen, connect, and work together with the ACC community. By sharing knowledge and experiences across borders, he believes we can help each person with ACC feel less alone and more empowered in their journey.

私は、東京の病院で副腎皮質がん（ACC）を中心とした腫瘍内分泌診療に携わっている内分泌内科専門医です。また、日本とドイツ、オーストラリアで、ACCに関するトランスレーショナルリサーチにも取り組んでおります。アンバサダーとして、研究を進めるだけでなく、ACCと共に生きる患者さんのコミュニティの声に耳を傾け、患者さんお一人おひとりが孤立することなく、ともに前向きな道を探していけるよう努めてまいります。

MELODY

Research Scientist

🇨🇳 🇺🇸

Melody was born in 1989 in China, and now lives in Salt Lake City (US). She became an ambassador for LCACC in 2023. At the time, she was a research scientist studying the mechanisms of and potential therapies for ACC. During her work, she was deeply moved by the board members and their personal stories of resilience in the fight against this disease.
As a scientist with experience in both pre-clinical and clinical research, she hopes to leverage my expertise to support and empower more people in their journey against ACC!

我在2023年成为“让我们治愈肾上腺皮质瘤”患者倡导组织的大使。那时我是一名科研人，正在研究肾上腺皮质瘤的机制和疗法。在工作过程中，我接触到了LCACC患者倡导组织并且被几位成员以及他们的抗癌故事深深的打动。
作为一名有着多年临床前期以及临床试验经验的科研人员，我希望我的专业可以帮助到更多的人！

NATALIE

Patient

🇸🇰 🇺🇸 🇨🇿

Natálie was born in the Czech Republic in 1996 and moved to Slovakia at the age of 13, where she has lived ever since. She graduated from the faculty of law and works as a lawyer, although she is currently on a “short” break due to ongoing medical treatment.

In June 2023, Natália was diagnosed with adrenocortical carcinoma. Following surgery, she completed 4 cycles of chemotherapy and began treatment with mitotane. Unfortunately, this treatment was not successful, as metastatic disease developed one year later. Therefore she underwent another surgery, followed by radiation treatment of some metastases using the CyberKnife. Since January 2025 she is receiving a less commonly used but, in her case, effective combination of immunotherapy with pembrolizumab and lenvatinib. The metastases are shrinking and she continues to fight not just for her but also for other patients.

Rada sa s vami porozprávam, podelím sa o svoje skúsenosti a objasním celý priebeh mojej liečby. V prípade potreby vás tiež môžem spojiť s lekármi na Slovensku alebo v Českej republike.

PHILLIP

Consultant Nurse / Clinical research

🇬🇧 🇨🇳

Phillip is a consultant Nurse in Endocrinology in UK, with 26 years of experience of caring for people with ACC and recently completed my PhD at King’s College London. He has conducted a qualitative study exploring the lived experiences of individuals living with this disease, which took 7 years to complete. He is a member of Society for Endocrinology and European Society for Endocrinology. He is also the President of Federation of International Nurses in Endocrinology working closely with International Society for Endocrinology to support the development of endocrine nurses worldwide. 

我是一名在英国从事内分泌科工作的顾问护士，拥有26年护理肾上腺皮质癌（ACC）患者的经验。我近期在伦敦国王学院完成了博士学位，并开展了一项历时7年的定性研究，探索该疾病患者的生活体验。我是英国内分泌学会和欧洲内分泌学会的会员。我担任国际内分泌护士联合会主席，与国际内分泌学会紧密合作，致力于支持全球内分泌护士的发展。

TAMARA

5 year survivor

🇺🇸

Tamara is a nurse practitioner.  She was diagnosed stage 3 adrenal cancer
in Oct. 2019. Tamara underwent total left adrenalectomy, IV and oral chemo.  She is strong, resilient, grateful, unique and kind. Tamara is a 5-year survivor!

TANIA

8 year survivor

🇺🇸 🇮🇹

Born in July 1961 in Valletta, Malta, Tania is engaged in educational projects on a freelance basis following a long career in Management. Her main interests are the performing arts, environmental preservation, animal welfare and swimming in summer in Malta’s beautiful sea.
Tania was diagnosed with ACC in March 2018. The 10cm tumor was not attached to the adrenal gland which made diagnosis trickier and long-winded.
After re-section, she underwent 6 sessions of IV chemo given that with a population of 500k it was a unique case at the time. She is currently in remission.
This diagnosis provided valuable lessons. Advocate for yourself, but also make the most of your life, be a good person (I hope I always was), be happy, and be extremely grateful for every single day and all that we take so much for granted.

TOM

Patient

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Tom, born in Columbus Ohio, is semi-retired. He is always learning new things and trying new adventures. He was diagnosed with squamous cell carcinoma in his tonsil in 2003. Tom had 3 surgeries and 36 radiation treatments. He was diagnosed with ACC in Sept of 2012and then again in Nov of 2019. Both times Tom had the tumor and adrenal gland resected. He have been NED since 2019.

VALERIE

Patient

🇫🇷

Valérie est née en 1968 et habite en France. Elle a été opérée le 22 septembre 2020 d’un ACC de 13x11cms de la glande surrénale droite. Traitée pendant 5 ans avec le Mitotane et actuellement sans récidive. Elle a changé son mode de vie : elle a arrêté sa vie professionnelle pour reprendre ses études et accompagner les patients dans ce parcours de vie avec et après la maladie.
L’ACC est un cancer agressif mais nous sommes nombreux à travers le monde à pouvoir témoigner qu’il est possible de s’en sortir.
Valérie serait ravie de pourvoir vous écouter et faciliter votre parcours de soins à travers un accompagnement en visio ou par téléphone.