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SUMMARY:Global Workshop on Access to Rare Disease Diagnosis and Treatment
DESCRIPTION:This virtual workshop focuses on how different stakeholders contribute to improving access to RD treatment and diagnosis. \n\n\nBy Chinese Organization for Rare Disorders (C.O.R.D.)\n\n\n\nProgram :\n\n\n\n\nOpening Remarks – 7:00 PM – 7:05 PM\nWelcome Speech –  7:05 PM – 7:10 PM\nCurrent Headwinds in Reimbursement of Cell/Gene Therapy Drugs – 7:10 PM – 7:35 PM\nValue Assessment and Payment of Gene Therapy: Challenges and Solutions –  7:35 PM – 8:00 PM\nAccess to Rare Disease Treatment in China – 8:00 PM – 8:25 PM\nHow to Improve Access to Better Treatment through Digital Methods  +Q&A –  8:25 PM – 8:50 PM (done by Let’s Cure ACC)\nTea Break – 8:50 PM – 9:00 PM\nSanofi’s Commitment in Rare Diseases – 9:00 PM – 9:05 PM\nReducing Diagnostic Delay in Rare Diseases in France: AccelRare®+Q&A –  9:05 PM – 9:25 PM\nBuilding the ‘Casa dos Raros’ in Brazil – 9:25 PM – 9:50 PM\nThe Rare Disease Trust Fund in Singapore – 9:50 PM – 10:05 PM\nSystematic Solution to Access to Rare Disease Treatment: Case study of Japan – 10:05 PM – 10:20 PM\nEnding Speech – 10:20 PM – 10:30 PM
URL:https://letscureacc.com/event/global-workshop-on-access-to-rare-disease-diagnosis-and-treatment/
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