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X-WR-CALDESC:Events for Let's Cure ACC
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DTSTART;VALUE=DATE:20240413
DTEND;VALUE=DATE:20240414
DTSTAMP:20260403T222510
CREATED:20240321T074816Z
LAST-MODIFIED:20240321T085236Z
UID:8925-1712966400-1713052799@letscureacc.com
SUMMARY:Nebennierenkarzinom in Würzburg
DESCRIPTION:Samstag\, 13. April 2024 · 10.00 – 16.00 Uhr \nHörsaal ZOM · Zentrum Operative Medizin \nOberdürrbacher Str. 6 · Haus A1/A2 97080 Würzburg \nSprechen Sie mit Marc von Let’s Cure ACC vor Ort. \n  \n  \nhttps://www.med.uni-wuerzburg.de/fileadmin/0300-ccc/2023/Nebennierenkarzinom_Kinderklinik-weboptimiert.pdf
URL:https://letscureacc.com/event/nebennierenkarzinom-in-wurzburg/
LOCATION:Oberdürrbacher Str. 6 · Haus A1/A2 97080 Würzburg\, Oberdürrbacher Str. 6\, Würzburg\, 97080\, Germany
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20230228
DTEND;VALUE=DATE:20230301
DTSTAMP:20260403T222510
CREATED:20230221T152007Z
LAST-MODIFIED:20230221T152114Z
UID:8487-1677542400-1677628799@letscureacc.com
SUMMARY:Global Workshop on Access to Rare Disease Diagnosis and Treatment
DESCRIPTION:This virtual workshop focuses on how different stakeholders contribute to improving access to RD treatment and diagnosis. \n\n\nBy Chinese Organization for Rare Disorders (C.O.R.D.)\n\n\n\nProgram :\n\n\n\n\nOpening Remarks – 7:00 PM – 7:05 PM\nWelcome Speech –  7:05 PM – 7:10 PM\nCurrent Headwinds in Reimbursement of Cell/Gene Therapy Drugs – 7:10 PM – 7:35 PM\nValue Assessment and Payment of Gene Therapy: Challenges and Solutions –  7:35 PM – 8:00 PM\nAccess to Rare Disease Treatment in China – 8:00 PM – 8:25 PM\nHow to Improve Access to Better Treatment through Digital Methods  +Q&A –  8:25 PM – 8:50 PM (done by Let’s Cure ACC)\nTea Break – 8:50 PM – 9:00 PM\nSanofi’s Commitment in Rare Diseases – 9:00 PM – 9:05 PM\nReducing Diagnostic Delay in Rare Diseases in France: AccelRare®+Q&A –  9:05 PM – 9:25 PM\nBuilding the ‘Casa dos Raros’ in Brazil – 9:25 PM – 9:50 PM\nThe Rare Disease Trust Fund in Singapore – 9:50 PM – 10:05 PM\nSystematic Solution to Access to Rare Disease Treatment: Case study of Japan – 10:05 PM – 10:20 PM\nEnding Speech – 10:20 PM – 10:30 PM
URL:https://letscureacc.com/event/global-workshop-on-access-to-rare-disease-diagnosis-and-treatment/
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20230128
DTEND;VALUE=DATE:20230129
DTSTAMP:20260403T222510
CREATED:20230115T092526Z
LAST-MODIFIED:20230115T093305Z
UID:8458-1674864000-1674950399@letscureacc.com
SUMMARY:Patient centered medical conference about ACC
DESCRIPTION:SAVE THE DATE\nOn January 28th at 10 A.M EST (Duration : 2h)\nWatch live here \n\nAgenda:\n\nIntroduction to ACC – Dr. Julie Hallanger Johnson\, Moffit Cancer Center\nMitotane treatment: Who\, when and how long and management of the side effects related to Mitotane – Dr. Katja Kiseljak-Vassiliades\, CU Anschutz Medical Campus Office of Inclusion and OutreachAnschutz Medical Campus\, University of Colorado\nPatient Assistance Program for Mitotane – Ms. Kelly Price\, Head of Rare Disease HRA Pharma\nWhen liver directed therapies are indicated in ACC – Dr. Venkatesh Krishnasamy\, New York-Presbyterian / Columbia University Columbia University Irving Medical Center\nWhen surgery is indicated in metastatic ACC – Dr. Jonathan Hernandez\, National Cancer Institute/National Institutes of Health\nWhen lung metastesectomy is indicated – Dr. Choung Hoang\, National Cancer Institute/National Institutes of Health\nMedical management of metastatic disease and indications for radiation treatment – Dr. Tito Fojo\, New York-Presbyterian / Columbia University Irving Medical Center\nClinical Trials in ACC – Dr. Jaydi Del Rivero\, National Cancer Institute/National Institutes of Health\nThe Patient’s Voice/Advocate for Yourself –  Ms. Jennifer Jeffries-Wright
URL:https://letscureacc.com/event/january28_conference/
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BEGIN:VEVENT
DTSTART;TZID=UTC:20220113T190000
DTEND;TZID=UTC:20220115T070000
DTSTAMP:20260403T222510
CREATED:20211228T150248Z
LAST-MODIFIED:20211228T150459Z
UID:3853-1642100400-1642230000@letscureacc.com
SUMMARY:ACC Question and Answer With Dr. del Rivero
DESCRIPTION:This is where we will host Dr. Del Rivero on January 13\, 2022 at 7pm for an interview and question and answer session for people that are fighting ACC.
URL:https://letscureacc.com/event/https-www-facebook-com-groups-1046439086194860/
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20210930
DTEND;VALUE=DATE:20211003
DTSTAMP:20260403T222510
CREATED:20210909T050042Z
LAST-MODIFIED:20210909T050107Z
UID:2807-1632960000-1633219199@letscureacc.com
SUMMARY:8th International Adrenal Cancer Symposium
DESCRIPTION:We are glad to invite you to participate in the 8th International Adrenal Cancer Symposium from September 30 to October 2 in Brescia. \nAlthough the symposium is virtual and we will not meet in person\, we are excited for the opportunity to organize \nthe meeting and we hope that you enjoy the scientific programme covering many areas of research on this rare tumor. \nWe are sure that despite being remotely connected there will be an intense and fruitful discussion.  \nFriendship and enthusiasm in sharing research are never distant\, perhaps in space\, but not in the heart!
URL:https://letscureacc.com/event/8th-international-adrenal-cancer-symposium/
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