{"id":8489,"date":"2023-02-21T16:20:07","date_gmt":"2023-02-21T15:20:07","guid":{"rendered":"https:\/\/letscureacc.com\/?post_type=tribe_events&p=8489"},"modified":"2023-02-21T16:26:22","modified_gmt":"2023-02-21T15:26:22","slug":"global-workshop-on-access-to-rare-disease-diagnosis-and-treatment","status":"publish","type":"tribe_events","link":"https:\/\/letscureacc.com\/pt-pt\/event\/global-workshop-on-access-to-rare-disease-diagnosis-and-treatment\/","title":{"rendered":"Global Workshop on Access to Rare Disease Diagnosis and Treatment"},"content":{"rendered":"

This virtual workshop<\/a> focuses on how different stakeholders contribute to improving access to RD treatment and diagnosis.<\/strong><\/p>\n

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By\u00a0Chinese Organization for Rare Disorders (C.O.R.D.)<\/strong><\/span><\/span><\/h4>\n<\/div>\n<\/section>\n
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Program :<\/div>\n
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  • Opening Remarks – 7:00\u202fPM\u00a0–\u00a07:05\u202fPM<\/li>\n
  • Welcome Speech –\u00a0\u00a07:05\u202fPM – 7:10\u202fPM<\/li>\n
  • Current Headwinds in Reimbursement of Cell\/Gene Therapy Drugs – 7:10\u202fPM – 7:35\u202fPM<\/li>\n
  • Value Assessment and Payment of Gene Therapy: Challenges and Solutions –\u00a0\u00a07:35\u202fPM – 8:00\u202fPM<\/li>\n
  • Access to Rare Disease Treatment in China – 8:00\u202fPM – 8:25\u202fPM<\/li>\n
  • How to Improve Access to Better Treatment through Digital Methods\u00a0 +Q&A <\/em>–<\/span>\u00a0<\/span> 8:25\u202fPM – 8:50\u202fPM (done by Let’s Cure ACC)<\/strong><\/em><\/li>\n
  • Tea Break – 8:50\u202fPM – 9:00\u202fPM<\/li>\n
  • Sanofi\u2019s Commitment in Rare Diseases –\u00a09:00\u202fPM – 9:05\u202fPM<\/li>\n
  • Reducing Diagnostic Delay in Rare Diseases in France: AccelRare\u00ae+Q&A –\u00a0\u00a09:05\u202fPM – 9:25\u202fPM<\/li>\n
  • Building the ‘Casa dos Raros’ in Brazil – 9:25\u202fPM – 9:50\u202fPM<\/li>\n
  • The Rare Disease Trust Fund in Singapore – 9:50\u202fPM – 10:05\u202fPM<\/li>\n
  • Systematic Solution to Access to Rare Disease Treatment: Case study of Japan – 10:05\u202fPM – 10:20\u202fPM<\/li>\n
  • Ending Speech – 10:20\u202fPM – 10:30\u202fPM<\/li>\n<\/ul>\n<\/div>\n<\/div>\n<\/div>\n","protected":false},"excerpt":{"rendered":"

    This virtual workshop focuses on how different stakeholders contribute to improving access to RD treatment and diagnosis. By\u00a0Chinese Organization for Rare Disorders (C.O.R.D.) Program : Opening Remarks – 7:00\u202fPM\u00a0–\u00a07:05\u202fPM Welcome Speech –\u00a0\u00a07:05\u202fPM – 7:10\u202fPM Current Headwinds in Reimbursement of Cell\/Gene Therapy Drugs – 7:10\u202fPM –…<\/p>\n","protected":false},"author":1,"featured_media":0,"template":"","meta":{"give_campaign_id":0,"inline_featured_image":false,"_tribe_events_status":"","_tribe_events_status_reason":"","footnotes":""},"tags":[],"tribe_events_cat":[],"class_list":["post-8489","tribe_events","type-tribe_events","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/letscureacc.com\/pt-pt\/wp-json\/wp\/v2\/tribe_events\/8489","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/letscureacc.com\/pt-pt\/wp-json\/wp\/v2\/tribe_events"}],"about":[{"href":"https:\/\/letscureacc.com\/pt-pt\/wp-json\/wp\/v2\/types\/tribe_events"}],"author":[{"embeddable":true,"href":"https:\/\/letscureacc.com\/pt-pt\/wp-json\/wp\/v2\/users\/1"}],"version-history":[{"count":0,"href":"https:\/\/letscureacc.com\/pt-pt\/wp-json\/wp\/v2\/tribe_events\/8489\/revisions"}],"wp:attachment":[{"href":"https:\/\/letscureacc.com\/pt-pt\/wp-json\/wp\/v2\/media?parent=8489"}],"wp:term":[{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/letscureacc.com\/pt-pt\/wp-json\/wp\/v2\/tags?post=8489"},{"taxonomy":"tribe_events_cat","embeddable":true,"href":"https:\/\/letscureacc.com\/pt-pt\/wp-json\/wp\/v2\/tribe_events_cat?post=8489"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}