{"id":10528,"date":"2026-01-23T11:17:37","date_gmt":"2026-01-23T10:17:37","guid":{"rendered":"https:\/\/letscureacc.com\/?page_id=10528"},"modified":"2026-01-23T11:41:12","modified_gmt":"2026-01-23T10:41:12","slug":"o-organizacii-lets-cure-acc-new","status":"publish","type":"page","link":"https:\/\/letscureacc.com\/sk\/o-organizacii-lets-cure-acc-new\/","title":{"rendered":"O organiz\u00e1cii Let\u2019s Cure ACC"},"content":{"rendered":"\t\t
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Let\u2019s Cure ACC<\/strong><\/em> je jedin\u00e1 medzin\u00e1rodn\u00e1 neziskov\u00e1 organiz\u00e1cia, ktor\u00e1 sa venuje v\u00fdlu\u010dne adrenokortik\u00e1lnemu karcin\u00f3mu (ACC). Jej cie\u013eom je podpora celej komunity ACC \u2013 vr\u00e1tane pacientov, lek\u00e1rov v\u0161etk\u00fdch \u0161pecializ\u00e1ci\u00ed a v\u00fdskumn\u00edkov. Na\u0161\u00edm poslan\u00edm je prep\u00e1ja\u0165 \u013eud\u00ed, poskytova\u0165 pacientom d\u00f4veryhodn\u00e9 inform\u00e1cie a psychologick\u00fa podporu, zvy\u0161ova\u0165 povedomie o ACC a u\u013eah\u010dova\u0165 pr\u00edstup k mo\u017enostiam financovania.<\/span><\/p>

Fungujeme na dobrovo\u013en\u00edckej b\u00e1ze a n\u00e1\u0161 t\u00edm ambas\u00e1dorov \u2013 vr\u00e1tane pacientov, vedcov a zdravotn\u00edkov \u2013 hovor\u00ed viacer\u00fdmi jazykmi, aby mohol pom\u00f4c\u0165 v\u00e1m aj v\u0161etk\u00fdm ostatn\u00fdm, ktor\u00ed n\u00e1s kontaktuj\u00fa. Pre\u010d\u00edtajte si viac inform\u00e1ci\u00ed o na\u0161ej <\/span>spr\u00e1vnej rade<\/a> a ambas\u00e1doroch<\/a>, <\/strong>ktor\u00e9 s\u00fa dostupn\u00e9 na na\u0161om webe \u2013 a nev\u00e1hajte sa ku n\u00e1m prida\u0165!<\/span><\/p>

Let\u2019s Cure ACC riadi odborn\u00e1 <\/span>lek\u00e1rska rada expertov (Medical Advisory Board \u2013 MAB)<\/a><\/strong>, ktor\u00fa tvoria popredn\u00ed experti v oblasti starostlivosti o pacientov s ACC a v\u00fdskumu tohto ochorenia.<\/span><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t

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Spolo\u010dne pracujeme na tom, aby sme:<\/b><\/p>

  1. Prep\u00e1jali komunitu ACC <\/b>\u2013 Prekon\u00e1vame bari\u00e9ry medzi pacientmi, lek\u00e1rmi a v\u00fdskumn\u00edkmi, aby sme zlep\u0161ili vz\u00e1jomn\u00fa podporu a spolupr\u00e1cu. Podporujeme interdisciplin\u00e1rnu a medzin\u00e1rodn\u00fa spolupr\u00e1cu, ktor\u00e1 m\u00e1 ur\u00fdchli\u0165 pokroky v diagnostike, lie\u010dbe a v\u00fdskume ACC, ako aj v z\u00edskavan\u00ed grantov a finan\u010dnej podpory.

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  2. Podporovali pacientov a ich rodiny <\/b>\u2013 Poskytujeme spo\u013eahliv\u00e9 inform\u00e1cie, ktor\u00e9 pom\u00e1haj\u00fa pacientom porozumie\u0165 ich diagn\u00f3ze a mo\u017enostiam lie\u010dby. V pr\u00edpade potreby poskytujeme psychologick\u00fa podporu \u2013 individu\u00e1lne alebo v skupin\u00e1ch. V\u010faka na\u0161im kontaktom v\u00e1m vieme pom\u00f4c\u0165 n\u00e1js\u0165 najbli\u017e\u0161\u00ed lek\u00e1rsky t\u00edm \u0161pecializuj\u00faci sa na ACC.

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  3. Zvy\u0161ovali povedomie o tejto zriedkavej chorobe <\/b>\u2013 Zabezpe\u010dujeme \u0161\u00edrenie presn\u00fdch a aktu\u00e1lnych inform\u00e1ci\u00ed prostredn\u00edctvom n\u00e1\u0161ho viacjazy\u010dn\u00e9ho webu a \u0161\u00edren\u00edm poznatkov a povedomia o ACC cez celosvetov\u00e9 informa\u010dn\u00e9 a komunika\u010dn\u00e9 kampane.

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    Ak n\u00e1s chcete podpori\u0165 v na\u0161ej \u010dinnosti, zv\u00e1\u017ete mo\u017enos\u0165 sta\u0165 sa <\/span>\u010dlenom<\/a> <\/strong>na\u0161ej organiz\u00e1cie \u2013 na po\u010dtoch z\u00e1le\u017e\u00ed a v\u0161etci spolu, zjednoten\u00ed, m\u00f4\u017eeme dosiahnu\u0165 skuto\u010dn\u00fa zmenu vo vz\u0165ahu ku kompetentn\u00fdm autorit\u00e1m po celom svete!<\/span><\/p>

    Ka\u017ed\u00fd <\/span>pr\u00edspevo<\/strong>k<\/span><\/a> n\u00e1m tie\u017e ve\u013emi pom\u00f4\u017ee \u2013 na\u0161a organiz\u00e1cia nedost\u00e1va \u017eiadne dot\u00e1cie na poskytovanie v\u0161etk\u00fdch t\u00fdchto slu\u017eieb a je plne z\u00e1visl\u00e1 od \u0161tedrosti darcov.<\/span><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"

    Let\u2019s Cure ACC je jedin\u00e1 medzin\u00e1rodn\u00e1 neziskov\u00e1 organiz\u00e1cia, ktor\u00e1 sa venuje v\u00fdlu\u010dne adrenokortik\u00e1lnemu karcin\u00f3mu (ACC). Jej cie\u013eom je podpora celej komunity ACC \u2013 vr\u00e1tane pacientov, lek\u00e1rov v\u0161etk\u00fdch \u0161pecializ\u00e1ci\u00ed a v\u00fdskumn\u00edkov. Na\u0161\u00edm poslan\u00edm je prep\u00e1ja\u0165 \u013eud\u00ed, poskytova\u0165 pacientom d\u00f4veryhodn\u00e9 inform\u00e1cie a psychologick\u00fa podporu, zvy\u0161ova\u0165 povedomie o…<\/p>\n","protected":false},"author":416,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"full_width.php","meta":{"give_campaign_id":0,"inline_featured_image":false,"footnotes":""},"class_list":["post-10528","page","type-page","status-publish","hentry"],"campaignId":"","_links":{"self":[{"href":"https:\/\/letscureacc.com\/sk\/wp-json\/wp\/v2\/pages\/10528","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/letscureacc.com\/sk\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/letscureacc.com\/sk\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/letscureacc.com\/sk\/wp-json\/wp\/v2\/users\/416"}],"replies":[{"embeddable":true,"href":"https:\/\/letscureacc.com\/sk\/wp-json\/wp\/v2\/comments?post=10528"}],"version-history":[{"count":5,"href":"https:\/\/letscureacc.com\/sk\/wp-json\/wp\/v2\/pages\/10528\/revisions"}],"predecessor-version":[{"id":10550,"href":"https:\/\/letscureacc.com\/sk\/wp-json\/wp\/v2\/pages\/10528\/revisions\/10550"}],"wp:attachment":[{"href":"https:\/\/letscureacc.com\/sk\/wp-json\/wp\/v2\/media?parent=10528"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}