We are just a few patients around the world with this orphan disease, and for some of us it can be very isolating. Being able to interact with others is crucial: you can meet people experiencing the same (or almost the same) situation, having the same questions…
Here is a list of Facebook groups for ADRENAL CANCER PATIENTS around the world in different languages (by alphabetical order of languages). Those groups are private and a lot of them ask questions to allow you to become a member.
If you know other groups, please contact us so we can ask the group’s managers if they will allow us to put them on this website.
Thank you to the people who helped with the creation of the website: Martyn JONES (English), Petra BRUEGMANN (German), Kathleen FRISTENSKY and Thérése RODRIGUEZ-GITTON (Spanish), Edoardo TERZOLO and Coralie GAMBRO (Italian), Emmanuelle AFONSO, Hélène SOBRAL and Maria VILLARES FRAGOSO (Portuguese/Brazilian)