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Global Workshop on Access to Rare Disease Diagnosis and Treatment
February 28, 2023
This virtual workshop focuses on how different stakeholders contribute to improving access to RD treatment and diagnosis.
By Chinese Organization for Rare Disorders (C.O.R.D.)
Program :
- Opening Remarks – 7:00 PM – 7:05 PM
- Welcome Speech – 7:05 PM – 7:10 PM
- Current Headwinds in Reimbursement of Cell/Gene Therapy Drugs – 7:10 PM – 7:35 PM
- Value Assessment and Payment of Gene Therapy: Challenges and Solutions – 7:35 PM – 8:00 PM
- Access to Rare Disease Treatment in China – 8:00 PM – 8:25 PM
- How to Improve Access to Better Treatment through Digital Methods +Q&A – 8:25 PM – 8:50 PM (done by Let’s Cure ACC)
- Tea Break – 8:50 PM – 9:00 PM
- Sanofi’s Commitment in Rare Diseases – 9:00 PM – 9:05 PM
- Reducing Diagnostic Delay in Rare Diseases in France: AccelRare®+Q&A – 9:05 PM – 9:25 PM
- Building the ‘Casa dos Raros’ in Brazil – 9:25 PM – 9:50 PM
- The Rare Disease Trust Fund in Singapore – 9:50 PM – 10:05 PM
- Systematic Solution to Access to Rare Disease Treatment: Case study of Japan – 10:05 PM – 10:20 PM
- Ending Speech – 10:20 PM – 10:30 PM