From the lost ones

Some patients didn’t make it, but they (and their families) would like you to fight for YOU on THEIR behalf

Their stories, although sad, might be informative… Please remember them AND FIGHT!

Here are a few websites:


  • Sarah G. lost her battle with ACC :

Sarah sadly left her 2 young kids, her husband, and her beloved family at the age of 33, and Kathleen was just 29-year-old when she was separated from her beloved husband and family for ever. Happily, little Micah, diagnosed at 4 y.o., is NED after a difficult battle against the disease. Find their stories and much more explanations on ACC at


  • Shannon lost her battle in 2017 and is dearly remembered by her friends (in English): .