RESOURCES

Medical information

MEDICAL INFORMATION

We took a lot of time to sum up all of our findings. The medical knowledge and facts provided on this website come from a long process of reading and compiling medical articles and studies. We can only recommend you to educate yourself and learn about the topics you feel comfortable, to make your own assumptions and decisions. Please, remember that we are not doctors and only try to offer you some relevant information and data. Seek the advice of your physician or other qualified health provider regarding your health and condition. 

Below, you will find a selection of comprehensive medical resource that every patient (old or new) should read : key brochures, major international medical guidelines, and a curated list of useful resources, all available for download in PDF format. All currently available language versions are included.

Medical guidelines

Clinical predictors of outcome in advanced adrenocortical carcinoma: a multicenter international ENSAT study

Author: Mangone, Alessandra; Altieri, Barbara
Publication: European Journal of Endocrinology
Publisher: Oxford University Press
Date: 2026-03-06

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Efficacy of systemic therapy in metastatic adrenocortical carcinoma: a meta-analysis of prospective clinical trials.

Author: Shekar S, Hall A, Pham J, Crumbaker M, Liu J, Talmor B, Sim HW, Joshua AM.
Publication: Endocr Oncol.
Date: 2025 Sep 5

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Adrenocortical carcinoma a practical guide for clinicians

Author: Martin Fassnacht, Soraya Puglisi, Otilia Kimpel, Massimo Terzolo
Publication: The Lancet Diabetes & Endocrinology
Publisher: Elsevier
Date: May 2025

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A review of mitotane in the management of adrenocortical cancer

Author: Del Rivero, Jaydira; Else, Tobias
Publication: The Oncologist
Publisher: Oxford University Press
Date: 2024-07-22

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Adjuvant mitotane versus surveillance in low-grade, localised adrenocortical carcinoma (ADIUVO): an international, multicentre, open-label, randomised, phase 3 trial and observational study

Author: Terzolo M, Fassnacht M, Perotti P, Libé R, Kastelan D, Lacroix A, Arlt W, Haak HR, Loli P, Decoudier B, Lasolle H, Quinkler M, Haissaguerre M, Chabre O, Caron P, Stigliano A, Giordano R, Zatelli MC, Bancos I, Fragoso MCBV, Canu L, Luconi M, Puglisi S, Basile V, Reimondo G, Kroiss M, Megerle F, Hahner S, Kimpel O, Dusek T, Nölting S, Bourdeau I, Chortis V, Ettaieb MH, Cosentini D, Grisanti S, Baudin E, Berchialla P, Bovis F, Sormani MP, Bruzzi P, Beuschlein F, Bertherat J, Berruti A.
Publication: Lancet Diabetes Endocrinol.
Date: 2023 Oct 11

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European Society of Endocrinology clinical practice guidelines on the management of adrenal incidentalomas, in collaboration with the European Network for the Study of Adrenal Tumors

Author: Fassnacht, Martin; Tsagarakis, Stylianos
Publication: European Journal of Endocrinology
Publisher: Oxford University Press
Date:  2023-06-1

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Adrenocortical carcinomas and malignant phaeochromocytomas: ESMO–EURACAN Clinical Practice Guidelines for diagnosis, treatment and follow-up

Author: Fassnacht M, Assie G, Baudin E …
Publication: European Journal of Endocrinology
Publisher: Annals of Oncology
Date:  2020

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European Society of Endocrinology Clinical Practice Guidelines on the management of adrenocortical carcinoma in adults, in collaboration with the European Network for the Study of Adrenal Tumors

Author: Martin Fassnacht, Olaf M Dekkers, Tobias Else, Eric Baudin, Alfredo Berruti, Ronald R de Krijger, Harm R Haak, Radu Mihai, Guillaume Assie, Massimo Terzolo, 
Publication: Journal of Endocrinology
Date: Oct 2018

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BROCHURES IN ENGLISH

ACC Brochure – A guide for patients

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US Patient Guidebook on Lysodren
by HRA and LCACC

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Parent’s guidebook – Understanding Adrenocortical Carcinoma in childhood

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The story of adrenocortical carcinoma  (bROCHURE DESTINED TO KIDS)

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A SUM UP OF DIVERSE INFORMATION ON ADRENAL INSUFFICIENCY

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BROCHURES IN VARIOUS LANGUAGES

La historia del carcinoma adrenocortical (en Niños y Adolescentes)  🇪🇸

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Die Geschichte des adrenokortikalen Karzinoms (ACC) – Broschüre für Kinder 🇩🇪

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L’histoire du corticosurrénalome
(brochure pour enfants) 🇫🇷

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AdaKİ Korti’nin hikayesi (Çocuklar için broşür) 🇹🇷

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